UNCERTAIN follows two comics and their family members with disabilities as they use comedy and compassion to navigate the complexities of planning for an unknown future.

UNCERTAIN features New York comics Kirk Smith and Graham Kay.

Kirk’s adult son, JJ, lives 4,000 miles away in Sweden in a supported living community. Kirk grapples with the physical separation from his son, unable to find a viable long-term care option closer to home.

Graham’s adult brother, Peter, lives independently in Canada with support from his parents. Graham wrestles with what responsibility he has for Peter’s care when his aging parents are no longer able to provide day-to-day assistance.

We meet several other American families exploring existing supported living options and creating their own solutions.

Their stories illustrate where our current systems are falling short, and the real-life implications for families and disabled individuals.

Experts shed light on the current state of our long-term care system, how we got here, and how it impacts individuals, families, and our country.

What is the right path forward?

What does it mean to create diverse, inclusive, person-centered solutions?

The Challenge

Over the next decade, 500,000 young adults with intellectual and developmental disabilities (I/DD) will turn 21—the point at which federally mandated services end. Families across the country are grappling with profound uncertainty about where their children will live and who will support them as they grow older. Stable, long‑term housing is a critical social determinant of health, reducing medical costs and improving overall well‑being. At the same time, adults with developmental disabilities are living longer, achieving higher levels of education, and contributing unique strengths. That said, traditional group homes are economically unsustainable and were not designed around the needs of individuals with I/DD who more so often have have more than one condition.”

– Allison Kleinman, LCSW, Founder and CEO, Future Centered Care

Why This Film?

Countless parents, siblings and caregivers are in a constant state of uncertainty about the future, searching for how they will provide high-quality, safe and affordable housing and support for their loved ones. It’s a growing issue that has significant implications for our communities. UNCERTAIN will use the power of humor and human stories to explore the future of care for those with the varying support needs.

How You Can Get Involved

This documentary is an opportunity to expose, educate and inspire conversations and collaborations. It is a critical moment to illuminate the crisis, highlight promising solutions, and inspire cross‑sector engagement. Addressing this challenge should not fall solely on families; it represents a collective opportunity for regulatory, financial, and technological innovation. My hope is that this documentary serves to inform and activate society about the need to expand housing options to ensure quality of life for adults with I/DD and peace of mind for their parents and caretakers as they age.”

– Allison Kleinman, LCSW, Founder and CEO, Future Centered Care

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